UQ study shows nurses play vital role in care of terminally ill patients

13 November 2014

A University of Queensland study has found nurses play a crucial role in decisions surrounding treatment of terminally ill patients.
UQ School of Social Science Associate Professor Alex Broom said dying patients who were told further treatment would be futile often turned to nurses for emotional support.

University of Queensland Nursing School
Study nursing at UQ School of Nursing and Midwifery

“The transition to end-of-life care has traditionally been the doctor’s decision,” Dr Broom said.
“The study shows how important nurses are in decisions about when life-prolonging treatments should end and in supporting patients and families in the process of accepting that they are dying.
“Nurses often bear the brunt of patient and family grief as the end of life nears.
“Nurses spend so much time with patients that they are often in a better position than doctors to know how patients are really coping with often highly toxic, technically life-prolonging treatments.
“The study found that patients would often put on a brave face when their doctor was present and then ask the nurse to tell the doctor they’d had enough.
“This can put the nurse in a difficult position professionally, placing them as mediator between doctor, patient and often-panicked family members.”
Nurses in the study said communicating with patients and families was much easier when doctors had already spoken openly and honestly with patients about the fact that it was time to stop active treatment.
“A major problem for nurses is that some doctors avoid difficult conversations; even continuing patients on active treatment, while others were rushed or blunt, leaving the nurse to explain the situation and provide emotional support to patients and their families,” Dr Broom said.
The study involved 20 Australian nurses from Brisbane hospitals, mostly consisting of cancer nurses.
The study explored their experiences of caring in the context of medical futility.
Nurses in the study emphasised the emotional toll of caring for patients and families at the end of life, the need to balance caring with protecting themselves from burnout, and the fact that there was very limited debriefing or counselling provided.
“It’s not uncommon for a nurse to have to walk out of a room where a patient they have known for months or years has just died, straight into a finance meeting or to treat another patient, without five minutes to themselves to reflect on the previous patient’s death,” Dr Broom said.
While the nurses discussed the rewards of being involved in the transition to end-of-life care, they emphasised the mounting pressures on the nursing profession to engage in technical, task-orientated work and how this could compromise their capacity to support patients nearing the end of life.
“The results of the study show that nurses play a much greater role than previously thought in decisions about medical futility, and that their role as a crucial mediator and support provider in this context is increasingly challenged by the growing unrealistic expectations placed on nurses working in Australian hospitals,” Dr Broom said.

University of Queensland Nursing School

The Master of Nursing Studies at the University of Queensland has been specifically designed to prepare you to apply to work as a registered nurse within two years of study. Students complete 32 courses, 16 of which are clinical, or two days clinical practice per week for the first year, three days a week in the third semester, and five days per week in the final semester. There are 1,010 hours of clinical practice throughout the program.
Program: Master of Nursing Studies
Location: St Lucia, Brisbane, Queensland
Semester intake: February
Duration: 2 years

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UQ Master of Social Work Studies

Social work is an exciting and rewarding career for those interested in working with people, and in addressing social and community issues and problems. Social workers play a key role in developing a society based on social justice, and in alleviating disadvantage. Social workers stimulate action to change the social circumstances of individuals and groups who are socially excluded. They also work to reduce personal pain and distress, and provide direction for individual development and control over life situations.
The Master of Social Work Studies enables people with an undergraduate degree to qualify as a social worker and gain a postgraduate degree. The program is accredited by the Australian Association of Social Workers (AASW) and graduates will be eligible to join the Association on completion of the degree. The program is particularly suited to new graduates looking for a clearly defined career path, mid-life career changers, human service workers looking to upgrade their skills and become a qualified social worker, and international students seeking to work as a social worker in Australia or overseas.
Program: Master of Social Work Studies
Location: St Lucia, Brisbane, Queensland
Semester intake: February
Duration: 1.5 – 2 years

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